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Nora’s Story

Nora’s Journey Early Onset Congenital Scoliosis At just five and a half months old, tiny little Nora was diagnosed with congenital scoliosis.  We had noticed a curve in her spine; it was actually hard to see.  You would have only noticed it if you were looking for it or if you were a parent, because […]



Moriah’s Story

Moriah was born by C-section at Via Christi St. Francis Hospital in Wichita, Kansas, on November 6, 1996. The next morning during her checkup, the doctor heard an abnormal heart sound and called in a pediatric cardiologist to consult. Moriah was diagnosed with Tetrology of Fallot, a congenital heart defect and she was immediately transferred […]



Erin’s Story

Erin was born on February 2, 2002. It would have been her Maternal Great Grandmother’s 95th birthday, and Erin was the first girl on the paternal side of the family in 90 years! At approximately 37-38 weeks, I had an ultrasound to make sure things were on track. There was a question raised from that […]



Devyn’s Story

Devyn’s Story Devyn was born October 3rd, 2005. The pregnancy and delivery were anything but normal. I had a sub-chorionic bleed until my 5th month of pregnancy that almost caused me to miscarry. The delivery started out normal until I started to push…. He got stuck twice and then was not breathing when he was […]



Grace’s Story

On April 19, 2006 my husband and I went in for our routine 20 week ultrasound.  Long story short and many tears later, we were told our daughter would be born with an Omphalocele, basically a hernia at the umbilical cord.  A few days later we had an amniocentesis performed.  Ten days later, I received […]



Cameron & Dylan’s Story

My story is about two of the sweetest little boys you’ll ever meet.  Cameron (8yrs.) and Dylan (5yrs.)  The two brothers have many things in common, such as huge smiles that light up their whole face, an infectious laugh, and scoliosis.  Although they were both casted in plaster in Dec. 04, their journeys to that […]



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