The C.A.S.T. Support Group was developed to give families a way to communicate what we have in common; our young children with scoliosis. We can share our experiences regarding traditional and alternative treatments, and discuss the pros and cons of each. This very active discussion group is hosted by Yahoo Groups and has a constantly growing membership. By joining, you’ll have access to a number of informative files, photos and links having to do with infantile scoliosis. Best of all, it’s free!
Noel Industries: Noel EDF Casting Frames
Noel Industries is now able to provide cost effective, durable, stainless steel casting frames with multiple special features to physicians wanting to practice the Gold Standard of Care to their young patient’s affected by Progressive Infantile Scoliosis. Noel Industries will donate $250 of every frame sold back to ISOP.
Arthrogryposis Multiplex Congenita (AMC):
Group seeks to provide and encourage more understanding and mutual support between those diagnosed. Group also seeks to create a higher standard of AMC awareness via conventions, meetings, and studies.
Chiari Malformation and Syringomyelia:
The American Syringomyelia Alliance Project, Inc. (ASAP) is a non-profit, 501(c)(3), member supported organization, a nationwide clearinghouse for information regarding Chiari (CM) and syringomyelia (SM) and related disorders.
Ehlers-Danlos National Foundation creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome by creating and distributing accurate information, providing a network of support and communication, and fostering and funding reseach.
Madison’s Foundation is dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening diseases, and to facilitating effective communication among parents, physicians and medical experts.
The National Marfan Foundation is dedicated to saving lives, and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.
The Children’s Tumor Foundation. is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF).
Prader-Willi Syndrome Association (USA):
PWSA(USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those impacted by Prader-Willi syndrome.
Local Colorado Resource
Blue Star Connection
Connecting children with all types of challenges to music and musical instruments.
Lynx Collaborative Care Network:
Through the Lynx Collaborative Care Network, our participants and their families utilize the services of medical experts including Physician and Nurse Consultants, Researchers, and key resources from across the country and abroad. Because Lynxcare services are individualized, we are able to spend whatever time is required with the participant.