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Specific Disability Resources

There are many resources on the web for specific disabilities. We have included a few here that have been identified by our members as particularly helpful and/or located in Colorado.

After the Diagnosis – Specific recommendations for your child’s disability

ADHD


CHADD
Children and Adults with Attention Deficit Disorders or Hyperactivity

Autism Spectrum Disorders


Autism
(Colorado Department of Education)
Autism & Asperger Connections Colorado Springs
Autism and Developmental Disabilities Service at JFK Partners
Autism Society of Boulder County
Autism Society of Colorado
(ASC) provides information, support and advocacy
Larimer County Autism Society
Roaring Fork Autism Network

Autism Key (run by parents) including Autism Friend Finder

Brain Injury

Brain Injury Alliance Colorado

Blindness/Visual Impairment


Visual Impairment including Blindness
(Colorado Department of Education)
Colorado School for the Deaf and the Blind
Colorado Talking Book Library
Deaf-blindness (Colorado Department of Education)
The National Center on Deaf-Blindness

Cerebral Palsy
CHARGE Syndrome

CHARGE Syndrome Foundation

United Cerebral Palsy
Cerebral Palsy Guidance

Chromosome Disorders


The XXYY Project

Chromosome Disorder Outreach – Education, information, advocacy and support for all those
affected by any rare chromosome disorder.
The MIND Institute is a phenomenal resource for any who have children on the autism spectrum,
Fragile X Syndrome or many other genetic disorders that include neurodevelopmental issues.
Rare Chromosome Disorders Support Group – Good resources; also has listserv
Colorado Fragile X

Cri du Chat Syndrome


5p-  Minus Society
 – Parent support group for families having a child with 5p- Syndrome, also known as Cat
Cry Syndrome or Cri du Chat Syndrome.

Dandy-Walker Syndrome


Dandy-Walker Alliance

Deaf & Hard of Hearing


Hearing Impairment, including Deafness
(Colorado Department of Education)
Colorado Families for Hands & Voices – dedicated to supporting families with children who are Deaf or
Hard of Hearing without a bias around communication modes or methodology.

Down Syndrome


Colorado Springs Down Syndrome Association

Denver Adult Down Syndrome Clinic
Down Syndrome Pregnancy – A resource for expectant parents to help them as they await the
birth of a baby with Down syndrome.
Global Down Syndrome Foundation is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, educaton and advocacy.
Linda Crnic Institute for Down Syndrome
Rocky Mountain Down Syndrome Association (formerly Mile High Down Syndrome)

Duchenne Muscular Dystrophy


Muscular Dystrophy Parent Project

Dyslexia


Colorado Talking Book Library

Learning Ally – a national organization with audio books resources and dyslexia specialists
Rocky Mountain Branch of International Dyslexia Association

Dyspraxia


Dyspraxia Foundation, USA

Epilepsy


Epilepsy Foundation of Colorado

Fetal Alcohol Syndrome


NOFAS

Fragile X


Colorado Fragile X

Developmental FX – Specializing in clinical services to families with Fragile X Syndrome and other
neurodevelopmental disorders.
National Fragile X Foundation

Hydrocephalus


Colorado Pediatric Hydrocephalus Foundation, Inc.
(Facebook page)

Infantile Scoliosis


Infantile Scoliosis Outreach Program (ISOP)

Klinefelter Syndrome



KS&
A (Knowledge, Support & Action)
– Outreach to individuals and their families with one or more
extra X and/or Y chromosomes.
Klinefelter Syndrome Support Group Home Page

Learning Disabilities


Specific Learning Disabilities
(Colorado Department of Education)
LD Online
National Center for Learning Disabilities

Prader-Willi Syndrome

Prader-Willi Syndrome Association

Rett Syndrome


Rett Syndrome Association
Rocky Mountain
Rett Association

Sensory Processing Disorder & Sensory Integration


Sensory Processing Disorder Foundation

Sensory Processing Disorder Resource Center

Shaken Baby Syndrome


Hope for Hunter
– A Shaken Baby Syndrome Hope for Hunter Resource Center
National Center on Shaken Baby Syndrome
The Sarah Jane Brain Project – An open access site dedicated to sharing specific information for ALL
professionals and families interested internationally in shaken baby syndrome.

Smith-Lemli Syndrome


Smith-Lemli-Opitz/RSH Foundation

Spina Bifida


Spina Bifida Association of Colorado

Spinal Cord Injury & Paralysis



Christopher and Dana Reeve Foundation

Strokes

Children’s Hemiplegia and Stroke Association (CHASA) – Information and support for families of
children who have hemiplegia and/or childhood stroke.
Hemi-Kids – Information about online email support group for families of children who have hemiplegia
or hemiplegic cerebral palsy or childhood stroke.
Kids Have Strokes – Information on in utero stroke, perinatal stroke, prenatal stroke, infant stroke and
childhood stroke

Tourette Syndrome


Rocky Mountain Region Tourette Syndrome Association

Tuberous Sclerosis


Tuberous Sclerosis Alliance of the Rocky Mountain Region

VACTERL


VACTERL Network
– Now on Facebook

Williams Syndrome


The Williams Syndrome Association

Williams Syndrome Rocky Mountain Region

801 South Yosemite Street   |   Denver, CO 80230   |   303.691.9339   |   info@abilityconnectioncolorado.org