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Antonio’s Story


Posted in Syndromic

Antonio was born on December 6,1998. As soon as he was born, he didn’t look quite right so the doctors were rushed in and he was put in the NICU. After days of testing he was finally clinically diagnosed wit Marfan’s syndrome. We were told that there would be heart, lens, joints, muscle and spinal […]



Siobhan’s Story


Posted in Syndromic

Siobhan was born June 9th 1999 in Vancouver, Canada, 4 days late. Her birth was normal. We noticed at about 4-6 months old that she didn’t bear weight and, when her feet were on a flat surface, they pronated (rolled inwards) quite severely. Our family doctor sent her to see an orthopedist at our Children’s […]



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