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Infantile Scoliosis Outreach Program

Infantile Scoliosis Outreach Program

FOR FAMILIES

– What is Progressive Infantile Scoliosis?
–How Scoliosis Impacts the Body– Parent Power
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FOR PHYSICIANS

– About Dr. Mehta
– Physician Advisory
– Dr. Mehta Tribute
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OLIVIA’S STORY

This is the story of Olivia Noel—a child whose life revealed both the devastating consequences of delayed and inadequate treatment for infantile scoliosis and the extraordinary impact of determined advocacy, international collaboration, and early intervention. From infancy, Olivia’s rapidly progressing scoliosis challenged conventional medical thinking, forcing her family to search beyond borders for answers. Her journey—marked by innovation, resilience, heartbreak, and courage—became a catalyst for global change in how early-onset scoliosis is understood and treated. Though Olivia’s life was far too short, her legacy continues to shape care, research, and hope for children worldwide. Read the full story HERE

ISOP’S LATEST RESOURCES

Early Treatment Principles for Mehta/EDF Casting

This resource outlines the essential questions to ask your pediatric orthopedic surgeon.

An info-graphic of side effects and complications compiled over twenty years.

A guide for parents and caregivers to recognizing infantile scoliosis, understanding its progression, and learning about early treatment with EDF casting.

ISOP Videos

Heather Hyatt explains how she came to found the Infantile Scoliosis Outreach Program

PSA for ISOP featuring Peter Gallagher

Charlie’s Story

Little Charlie was born full term via normal delivery on July 11th 2015. He is our fourth child and we were all besotted with him.

Soon after Charlie was born I noticed his back was a ‘funny shape’, but I was afraid to say to anyone in case my fears came true. I was so anxious inside.

When Charlie was just 3 months old my husband was feeding him, and while burping him he noticed his back just wasn’t right. He told me his concerns and it was at that moment my fears became reality.

We saw the pediatrician at our local hospital who agreed that Charlie’s back looked ‘off’, and she arranged an X-ray for him. After the X-ray I was brought into the pediatricians office. I could immediately see on her screen that there was a curve in Charlie’s spine. I was absolutely devastated.

Continue…

Casting for Early Onset Scoliosis: A Physician’s Perspective

Pete Stasikelis MD – Shriner’s Hospitals for Children

Progressive infantile scoliosis (a type of early onset scoliosis) is a disease that can cause very significant breathing issues, even in early life. Normally, the lungs continue to develop until a child is at least eight years old. A significant spine deformity can also result in significant rib deformity. The combination of spine and rib deformity can result in a chest that gives the lungs no space in which to grow. Fortunately, treatment is possible. Read full article here.