Resources and Links

ISOP Resources

Scoliosis In Infants:
A booklet by Min H. Mehta, M.D., FRCS
How To Reverse Scoliosis
From the Journal Of Bone and Joint Surgery: A study of 136 children with progressive infantile scoliosis treated under the age of four years, and followed up for nine years, shows that the scoliosis can be reversed by harnessing the vigorous growth of the infant with serial corrective plaster jackets (Mehta Growth Guidance Casting).
Bathing and General Cast Care
Learn the ins and outs of cast care and good hygiene.
Help Boost Your Child’s Weight 
Since their organs, lungs and spine are working overtime, your child’s body is burning extra calories at all times.Ideas from parents to bolster their weight.
Diapering with Casts
Techniques and tips from parents who have been there for diapering a child in a cast.
Build Your Child’s Medical Portfolio
One portfolio of all related medical records can be a real lifesaver
How Scoliosis Impacts the Body
The effects of scoliosis on the entire body.
Halo Gravity Traction Explained
This intensive procedure can reduce the degree of curvature in cases of severe idiopathic or congenital scoliosis.
Radiation Exposure 
Radiation Exposure and the Treatment of Infantile Scoliosis
Scoliosis in Infants 
Information from The Scoliosis Association of the U.K.
Terms and Definitions
A glossary of terms and definitions pertaining to Infantile Scoliosis.
What to Ask Your Child’s Doctor About Scoliosis
Prepare for you child’s first visit to the Orthopedic Surgeon.  Download this list of important questions.
Infantile Scoliosis Screening Guide
ISOP offers this simple guide to scoliosis screening for pediatricians and parents.
ISOP Growing Hardware/Rod Handbook 
This handbook is a compilation of personal experiences and stories from several ISOP constituent parents whose children underwent various typed of distraction rod, implant surgeries.

Noel Industries: Noel EDF Casting Frames

Noel Industries is now able to provide cost effective, durable, stainless steel casting frames with multiple special features to physicians wanting to practice the Gold Standard of Care to their young patient’s affected by Progressive Infantile Scoliosis. Noel Industries will donate $250 of every frame sold back to ISOP.

Related Disorders

Arthrogryposis Multiplex Congenita (AMC):
Group seeks to provide and encourage more understanding and mutual support between those diagnosed. Group also seeks to create a higher standard of AMC awareness via conventions, meetings, and studies.

Chiari Malformation and Syringomyelia:
The American Syringomyelia Alliance Project, Inc. (ASAP) is a non-profit, 501(c)(3), member supported organization, a nationwide clearinghouse for information regarding Chiari (CM) and syringomyelia (SM) and related disorders.

Ehlers-Danlos National Foundation creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome by creating and distributing accurate information, providing a network of support and communication, and fostering and funding reseach.

Jeune’s Syndrome:
Madison’s Foundation is dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening diseases, and to facilitating effective communication among parents, physicians and medical experts.

Marfan’s Syndrome:
The National Marfan Foundation is dedicated to saving lives, and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.

The Children’s Tumor Foundation. is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF).

Prader-Willi Syndrome Association (USA):
PWSA(USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those impacted by Prader-Willi syndrome.

Local Colorado Resource

Blue Star Connection
Connecting children with all types of challenges to music and musical instruments.

CARE Partner

Lynx Collaborative Care Network:
Through the Lynx Collaborative Care Network, our participants and their families utilize the services of medical experts including Physician and Nurse Consultants, Researchers, and key resources from across the country and abroad. Because Lynxcare services are individualized, we are able to spend whatever time is required with the participant.

IMPORTANT: The information on this page is provided by parents of children with infantile scoliosis for other parents, not by physicians. It is for general informational purposes only and cannot substitute for the advice of a medical professional. The information provided on this website should not be used for diagnosing or treating any medical condition. ISOP does not assume any responsibility for results or consequences of any attempt to use or adopt any of the information provided on this website. Nothing on the ISOP website should be construed as an attempt to provide a medical opinion or otherwise engage in the practice of medicine. 
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