Specific Disability Resources
After the Diagnosis – Specific recommendations for your child’s disability
CHADD Children and Adults with Attention Deficit Disorders or Hyperactivity
Autism (Colorado Department of Education)
Autism & Asperger Connections Colorado Springs
Autism and Developmental Disabilities Service at JFK Partners
Autism Society of Boulder County
Autism Society of Colorado (ASC) provides information, support and advocacy
Larimer County Autism Society
Roaring Fork Autism Network
Autism Key (run by parents) including Autism Friend Finder
Brain Injury Alliance Colorado
Visual Impairment including Blindness (Colorado Department of Education)
Colorado School for the Deaf and the Blind
Colorado Talking Book Library
Deaf-blindness (Colorado Department of Education)
The National Center on Deaf-Blindness
CHARGE Syndrome Foundation
United Cerebral Palsy
Cerebral Palsy Guidance
The XXYY Project
Chromosome Disorder Outreach – Education, information, advocacy and support for all those
affected by any rare chromosome disorder.
The MIND Institute is a phenomenal resource for any who have children on the autism spectrum,
Fragile X Syndrome or many other genetic disorders that include neurodevelopmental issues.
Rare Chromosome Disorders Support Group – Good resources; also has listserv
Colorado Fragile X
5p- Minus Society – Parent support group for families having a child with 5p- Syndrome, also known as Cat
Cry Syndrome or Cri du Chat Syndrome.
Hearing Impairment, including Deafness (Colorado Department of Education)
Colorado Families for Hands & Voices – dedicated to supporting families with children who are Deaf or
Hard of Hearing without a bias around communication modes or methodology.
Colorado Springs Down Syndrome Association
Denver Adult Down Syndrome Clinic
Down Syndrome Pregnancy – A resource for expectant parents to help them as they await the
birth of a baby with Down syndrome.
Global Down Syndrome Foundation is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, educaton and advocacy.
Linda Crnic Institute for Down Syndrome
Rocky Mountain Down Syndrome Association (formerly Mile High Down Syndrome)
Muscular Dystrophy Parent Project
Colorado Talking Book Library
Learning Ally – a national organization with audio books resources and dyslexia specialists
Rocky Mountain Branch of International Dyslexia Association
Epilepsy Foundation of Colorado
Developmental FX – Specializing in clinical services to families with Fragile X Syndrome and other
neurodevelopmental disorders.
National Fragile X Foundation
Colorado Pediatric Hydrocephalus Foundation, Inc. (Facebook page)
Infantile Scoliosis Outreach Program (ISOP)
KS&A (Knowledge, Support & Action) – Outreach to individuals and their families with one or more
extra X and/or Y chromosomes.
Klinefelter Syndrome Support Group Home Page
Specific Learning Disabilities (Colorado Department of Education)
LD Online
National Center for Learning Disabilities
Prader-Willi Syndrome Association
Rett Syndrome Association
Rocky Mountain Rett Association
Sensory Processing Disorder Foundation
Sensory Processing Disorder Resource Center
Hope for Hunter – A Shaken Baby Syndrome Hope for Hunter Resource Center
National Center on Shaken Baby Syndrome
The Sarah Jane Brain Project – An open access site dedicated to sharing specific information for ALL
professionals and families interested internationally in shaken baby syndrome.
Smith-Lemli-Opitz/RSH Foundation
Spina Bifida Association of Colorado
Christopher and Dana Reeve Foundation
Children’s Hemiplegia and Stroke Association (CHASA) – Information and support for families of
children who have hemiplegia and/or childhood stroke.
Hemi-Kids – Information about online email support group for families of children who have hemiplegia
or hemiplegic cerebral palsy or childhood stroke.
Kids Have Strokes – Information on in utero stroke, perinatal stroke, prenatal stroke, infant stroke and
childhood stroke
Rocky Mountain Region Tourette Syndrome Association
Tuberous Sclerosis Alliance of the Rocky Mountain Region
VACTERL Network – Now on Facebook
The Williams Syndrome Association
Williams Syndrome Rocky Mountain Region
