Specific Disability Resources

There are many resources on the web for specific disabilities. We have included a few here that have been identified by our members as particularly helpful and/or located in Colorado.

After the Diagnosis – Specific recommendations for your child’s disability


Children and Adults with Attention Deficit Disorders or Hyperactivity

Autism Spectrum Disorders

(Colorado Department of Education)
Autism & Asperger Connections Colorado Springs
Autism and Developmental Disabilities Service at JFK Partners
Autism Society of Boulder County
Autism Society of Colorado
(ASC) provides information, support and advocacy
Larimer County Autism Society
Roaring Fork Autism Network

Autism Key (run by parents) including Autism Friend Finder

Brain Injury

Brain Injury Alliance Colorado

Blindness/Visual Impairment

Visual Impairment including Blindness
(Colorado Department of Education)
Colorado School for the Deaf and the Blind
Colorado Talking Book Library
Deaf-blindness (Colorado Department of Education)
The National Center on Deaf-Blindness

Cerebral Palsy
CHARGE Syndrome

CHARGE Syndrome Foundation

United Cerebral Palsy
Cerebral Palsy Guidance

Chromosome Disorders

The XXYY Project

Chromosome Disorder Outreach – Education, information, advocacy and support for all those
affected by any rare chromosome disorder.
The MIND Institute is a phenomenal resource for any who have children on the autism spectrum,
Fragile X Syndrome or many other genetic disorders that include neurodevelopmental issues.
Rare Chromosome Disorders Support Group – Good resources; also has listserv
Colorado Fragile X

Cri du Chat Syndrome

5p-  Minus Society
 – Parent support group for families having a child with 5p- Syndrome, also known as Cat
Cry Syndrome or Cri du Chat Syndrome.

Dandy-Walker Syndrome

Dandy-Walker Alliance

Deaf & Hard of Hearing

Hearing Impairment, including Deafness
(Colorado Department of Education)
Colorado Families for Hands & Voices – dedicated to supporting families with children who are Deaf or
Hard of Hearing without a bias around communication modes or methodology.

Down Syndrome

Colorado Springs Down Syndrome Association

Denver Adult Down Syndrome Clinic
Down Syndrome Pregnancy – A resource for expectant parents to help them as they await the
birth of a baby with Down syndrome.
Global Down Syndrome Foundation is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, educaton and advocacy.
Linda Crnic Institute for Down Syndrome
Rocky Mountain Down Syndrome Association (formerly Mile High Down Syndrome)

Duchenne Muscular Dystrophy

Muscular Dystrophy Parent Project


Colorado Talking Book Library

Learning Ally – a national organization with audio books resources and dyslexia specialists
Rocky Mountain Branch of International Dyslexia Association


Dyspraxia Foundation, USA


Epilepsy Foundation of Colorado

Fetal Alcohol Syndrome


Fragile X

Colorado Fragile X

Developmental FX – Specializing in clinical services to families with Fragile X Syndrome and other
neurodevelopmental disorders.
National Fragile X Foundation


Colorado Pediatric Hydrocephalus Foundation, Inc.
(Facebook page)

Infantile Scoliosis

Infantile Scoliosis Outreach Program (ISOP)

Klinefelter Syndrome

A (Knowledge, Support & Action)
– Outreach to individuals and their families with one or more
extra X and/or Y chromosomes.
Klinefelter Syndrome Support Group Home Page

Learning Disabilities

Specific Learning Disabilities
(Colorado Department of Education)
LD Online
National Center for Learning Disabilities

Prader-Willi Syndrome

Prader-Willi Syndrome Association

Rett Syndrome

Rett Syndrome Association
Rocky Mountain
Rett Association

Sensory Processing Disorder & Sensory Integration

Sensory Processing Disorder Foundation

Sensory Processing Disorder Resource Center

Shaken Baby Syndrome

Hope for Hunter
– A Shaken Baby Syndrome Hope for Hunter Resource Center
National Center on Shaken Baby Syndrome
The Sarah Jane Brain Project – An open access site dedicated to sharing specific information for ALL
professionals and families interested internationally in shaken baby syndrome.

Smith-Lemli Syndrome

Smith-Lemli-Opitz/RSH Foundation

Spina Bifida

Spina Bifida Association of Colorado

Spinal Cord Injury & Paralysis

Christopher and Dana Reeve Foundation


Children’s Hemiplegia and Stroke Association (CHASA) – Information and support for families of
children who have hemiplegia and/or childhood stroke.
Hemi-Kids – Information about online email support group for families of children who have hemiplegia
or hemiplegic cerebral palsy or childhood stroke.
Kids Have Strokes – Information on in utero stroke, perinatal stroke, prenatal stroke, infant stroke and
childhood stroke

Tourette Syndrome

Rocky Mountain Region Tourette Syndrome Association

Tuberous Sclerosis

Tuberous Sclerosis Alliance of the Rocky Mountain Region


– Now on Facebook

Williams Syndrome

The Williams Syndrome Association

Williams Syndrome Rocky Mountain Region

801 Yosemite Street   |   Denver, CO 80230   |   303.691.9339   |   info@abilityconnectioncolorado.org